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Draft Pan-Canadian Health Data Content Framework : Data Content Standard

Public Review

Canada’s health data landscape is complex and fragmented. Historically, the digitization of health data (having a way to capture data electronically) has been a priority, but sharing this data (e.g., among facilities, organizations and health systems) has not been a focus. As such, the information that exists cannot be shared due to a lack of standardization in data collection and a lack of communication between different health care systems.

To address this challenge, the Canadian Institute for Health Information (CIHI) developed the Pan-Canadian Health Data Content Framework, which defines, standardizes and models the health data required to enable connected care in Canada.

As part of Health Canada’s Working Together to Improve Health Care for Canadians Plan, Canada Health Infoway (Infoway) is implementing the Shared Pan-Canadian Interoperability Roadmap. This roadmap envisions modern, person-centric health care that is digitally connected and privacy-protected by design. In support of achieving connected care, CIHI and Infoway are working together to modernize information flow as set out in the roadmap. This collaboration has 3 goals:

• To enable the uninterrupted exchange of timely and accessible health information;

• To ensure that data carries the same meaning between health care providers and clinical systems across Canada; and

• Most importantly, to ensure that data benefits patients.

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in reply to Micheline's comment
Editorial
Is this because not all value sets are complete, just examples?
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Editorial
I tried the search or find function in Konveio. You can search a specific term and find the next occurrence in the document but it does not show you how many times it appears.
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Editorial
May want to also include the symbol for asterisk (*).
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Editorial
Not sure why female is not included for Sex at birth data element.
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in reply to Janice MacNeil's comment
Editorial
Testing what it looks like if there is disagreement on a comment.
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Editorial
link

Website note the review is open - "Public review period now open"
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in reply to Janice MacNeil's comment
Technical
Adding to Janice's comment to see how this appears in the summary of comments.
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Technical
Test comments on Appendix

Link copying example CA Core in the below copies in this format. link


Initially, until the Pan-Canadian Health Data Content Framework, CACDI and CA Core+External link reach maturity, technology vendors such as electronic medical records (EMR), electronic health records (EHR) and hospital information systems (HIS) vendors and industry partners will leverage the pan-Canadian interoperability standards led by Canada Health Infoway, such as Patient Summary and eReferral and eConsult.

Once maturity is achieved, as demonstrated through the maturity model, technology vendors and industry partners will use the Pan-Canadian Health Data Content Framework’s, CACDI and CA Core+ as their reference for data capture, for data storage, in development of databases and registries, and for data exchange. By adopting or mapping to the common data architecture established by the Pan-Canadian Health Data Content Framework, the CACDI and the CA Core+ FHIR profiles for data exchange, data captured in EMRs, EHRs and HIS will be accurate, will be consistent and will carry the same meaning — that is, such data will be interpreted in the same way by all these systems.
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Editorial
Test comment on Personal Identifier type value set
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Editorial
Test comment. Propose change line to About versus About me.
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Technical
Test within diagram
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Editorial
Testing comments Jan 27, 2025.
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